Positive updates.

This will be our last post this year, as next week we're jetting off to Fuerteventure for a pre cancer treatment recharge.

We have received a letter following on from the Staging Lap which confirms stage T3N1M0, Signet cell Adenocarcinoma.

Now that all of the tests and results are in, everyone is happy and treatment can soon start.

It's been a rollercoaster 2 months, but we're happy we have an accurate diagnosis, we know exactly what we are dealing with and have a plan moving forward.

For now, we hope you're well, look after yourself, have a fab few weeks and we'll be back soon!

Comments

First Chemo.

Our first chemo experience has been far from normal! As advised Tony started his steroids the day before chemo ( dexamethasone ). Steroids are given to take the day before, the day of, and the day after chemo. Our understanding is they help with the side effects and will giveTony a bit of a boost. It's advised to take them at breakfast and lunch as they can cause insomnia if you take them too late in the day. We arrived at the chemo ward nice and early. We took plenty of layers for Tony, aware that the chemo would cause an extreme sensitivity to cold, lots of snacks and a book to read as we were expecting to be at the hospital for up to 6 hours. We were taken into the chemo lounge which is a really bright and calming space, there's a tv on the wall playing relaxing music, the nurses are all upbeat and friendly. Tony got comfortable in one of the patient's chairs and one of the chemo nurses walked us through what to expect for the day. Tony's PICC line was flushed and h...

A little about us and how Cancer came to be.

Hey! Thanks for joining us and taking the time to read this. Long story short, if you're looking to read a blog about living with Oesophageal Cancer, you're in the right place! Short story long.... My name's Jo, I'm in my early 30's, live with Type 1 Diabetes and I'm partner to Tony. In November 2024 Tony was diagnosed with Stage 3 Oesophageal Cancer. We've started this blog to raise awareness, our experiences, tips and things we've learned along the way. The highs and lows, good and bad. Oh and have a good vent every so often too! So how did we find ourselves here? - PS, there's going to be a lot of plurals in here, lots of ''We''. While it's Tony that has the Cancer, I promised him from the start that he won't face a single moment of this alone, and as a result ''we'' have Cancer. Tony has had acid reflux for a long time, years in fact. It's always been managed with over the counter tablets like Nexium ...

The diagnosis aftermath.

When life throws you a curveball, you have options. You can't always see them straight away though. Sometimes you have to let the dust settle, which is exactly what we did. Our inital feelings are hard to put into words. For Tony, fear, shock. He's a brilliant problem solver and his first instinct was that he needed to get his affairs in order, plan for the worst. That's the issue with Cancer. It's scary, we don't talk about it. We hear a stage and assume death sentence. Instantly envisioning hair loss, sunken eyes. I think it's ingrained into us, yet we forget how far treatment and technology have come over the year. I was terrified, anticipatory grief. Intrusive thoughts about what was about to him, Chemo, illness. The fear of losing him, seeing him in pain. Again, negative connotations that instantly jump to mind. One thing that might sound strange is how the thought or idea of losing the person you love is horrific, it hurts in a way I don't know how t...

From Diagnosis to Determination - Oesophageal Junction Cancer Diary

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